CQC Welcomes New Coalition Partners: Hydrocephalus Association and FAIR Foundation

By Consumers For Quality Care, on August 5, 2020

CQC Welcomes New Coalition Partners: Hydrocephalus Association and FAIR Foundation

For Immediate Release

August 5, 2020

Contact: press@consumers4qualitycare.org

WASHINGTON — Consumers for Quality Care (CQC), a coalition of advocates and former policy makers working to provide a voice for patients in the health care debate, is pleased to welcome two new partners to the coalition. The Hydrocephalus Association and the FAIR Foundation have joined CQC in its efforts to advance patients’ demand for higher quality, affordable health care.

“Since our establishment in 1983, the Hydrocephalus Association has championed the rights of individuals with hydrocephalus in health care, education, labor, and scientific research,” said Amanda Garzon, National Director of Program Services and Communications. “Uniting our voice with other CQC Partners allows us to advocate more loudly and effectively for the quality health care and services individuals typically left out of the healthcare debate deserve, namely those with chronic medical conditions and in underserved populations.”

“Everyone who needs an organ transplant should be able to get it,” said Cathy Teal, Executive Director of the FAIR Foundation. “For over 15 years, the FAIR Foundation has advocated on behalf of transplant patients — to ensure they have access to medications, specialized care, and an equal opportunity to get an organ transplant regardless of geographical residency, race, gender or income level.”

“We are happy to welcome these invaluable organizations to our partner ranks,” said the Honorable Donna Christensen, CQC board member, physician, and former Member of Congress. “The Hydrocephalus Association works tirelessly to make sure that the hydrocephalus community’s voice is heard and their needs are addressed, and the FAIR Foundation is making an impact on reforms for organ transplantation in the United States. We welcome them to our fight for better health care.”

As the coalition continues to grow, CQC is proud to work with its partners to shape the health care debate through research, consumer-focused advocacy, and direct action on critical issues at the state and national levels.

The Hydrocephalus Association and the FAIR Foundation join a robust coalition of 21 leading advocacy organizations that are passionate about highlighting the needs and rights of health care consumers.

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ABOUT

Consumers for Quality Care (CQC) is a coalition of advocates and former policymakers working to provide a voice for patients in the health care debate as they demand better care. CQC is led by a board of directors that includes the Honorable Donna Christensen, physician and former Member of Congress; Jim Manley, former senior advisor to Senators Edward Kennedy and Harry Reid; and Jason Resendez, health care advocate.

Hydrocephalus Association (HA) serves as the primary nexus for research on hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) within the cavities of the brain.

FAIR Foundation works to change USA organ-donor policy to make more organs available for transplant, saving thousands of lives and reducing the number of patients on transplant lists.

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