The Myositis Association Joins Consumers for Quality Care Coalition
WASHINGTON — Consumers for Quality Care (CQC), an organization dedicated to ensuring that patients – and their right to affordable, quality care – remain at the forefront of the health care debate, is pleased to announce that The Myositis Association (TMA) has joined its coalition.
“We are thrilled to welcome The Myositis Association to the CQC coalition. TMA serves as the leading international organization to support patients living with myositis – a rare and often invisible disease - throughout the country and abroad,” said the Honorable Donna Christensen, CQC board member, physician and former Member of Congress. “TMA works tirelessly to raise awareness about the diversity of experiences that muscle inflammation diseases can cause and improve patients’ quality of life. CQC looks forward to amplifying the voices of TMA and its patient community through the #HealthCareFail campaign to highlight the high costs of essential care for people living with complex diseases.”
"Rare diseases, like myositis, are financially challenging for patients not only because of the costs of medications and procedures, but the need for equipment and home modifications. TMA is proud to partner with Consumers for Quality Care as we call for fair and equitable access to treatments, medications, durable medical equipment, and social services required to address complex chronic illnesses. TMA is confident we will accomplish great things partnering with CQC as we work to help reduce the financial burden of essential care for all patients," said Mary McGowan, Executive Director of The Myositis Association.
The Myositis Association joins CQC and 15 other groups, including Black Women’s Health Imperative and the National Minority Quality Forum, in advocating for the needs and rights of health care consumers.
Consumers for Quality Care (CQC) is a coalition of advocates and former policy makers working to provide a voice for patients in the health care debate as they demand better care. CQC is led by a board of directors that includes the Honorable Donna Christensen, physician and former Member of Congress; Jim Manley, former senior advisor to Senators Edward Kennedy and Harry Reid; and Jason Resendez, community advocate and Executive Director of the LatinosAgainstAlzheimer's Network and Coalition.
The Myositis Association (TMA) is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members and the medical community. TMA provides patient education and support, advocacy, physician education and research funding for myositis diseases.
To learn more about Consumers for Quality Care and the issues consumers are experiencing, visit www.consumers4qualitycare.org. To learn more about The Myositis Association and its work, visit www.myositis.org.